Good morning everyone! Well our first night in the Consolidation Phase was a success. Elizabeth had no adverse reactions to any of the chemo so far. I know God's hand is upon Elizabeth, her wonderful doctors, nurses, pharmacists,.......and the list goes on. There are so may wonderful, gifted people working with Elizabeth; they have been entrusted with such an enormous gift, the gift of healing and curing and letting go of the ones that they can not heal. I thank God for them and their responsibility to do what the Lord intended for them to do with their gifts. Okay, I know I am babbling but I just can not find the right way or words to express my gratitude and love I feel for each and everyone of them.
We should be allowed to go home later this evening. We had a little goof-up on one of her meds, 6-mercaptopurine or better known to me as 6-MP; but if you want to regal everyone with your vocabulary...go right ahead and use the biggie, I will stick with 6-MP. I guess you can not have any food an hour before hand or take with milk, well unaware of this we were enjoying a movie with popcorn, if you consider a great movie watching Dr. G the Medical Examiner a movie. Yuck! what we don't do for our children....although it is a good diet plan women, I did not finish the popcorn! We ended up getting it at 11:45 pm and she takes this one roughly every 24 hours.
Elizabeth has several new chemo drugs this round. Cyclophosphamide (cytoxan) given day 1 (Dec/9) and day 29 (Jan/06), these are her two admit days into the hospital after her clinic visit. These stays will last about 1-2 days the chemo is given through her IV which takes about 30 minutes. Please pray for the common side effects which are: hair loss, tiredness, nasal stuffiness and congestion, loss of appetite, swelling of hands/feet, sore throat/mouth or difficulty swallowing.
The second drug is Cytarabine (ARA-C). This is given through her IV as well and takes about 5 minutes to give. Liz will receive ARA-C on day 1-4 (Dec/9 - Dec/12), 8-11 (Dec/16 - Dec/19), 29-32 (Jan/06 - Jan/09), 36-39 (Jan/13 - Jan/16). The side effects to pray for are as follows: hair loss, tiredness, loss of appetite, sore throat/mouth or difficulty swallowing, abdominal pain, and tingling or numbness
Drug number three is Mercaptopurine (6-MP). Liz will receive this drug orally on days 1-14 (Dec/9 - Dec/22), 29-42 (Jan/6 - Jan/19). The side effects to pray for are: soreness in the mouth or throat, loss of appetite, and nausea.
Liz will remain on a few of the chemo drugs she had in the Introduction Phase like PEG-asparaginase, Vincristine, and Intrathecal Mexthotrexate (chemo in the spine). the combined side effects of these three drugs to pray for are: nausea/vomiting, loss of appetite, drowsiness, soreness, redness, or swelling at the injection site, increased thirst, appetite, or urination, hair loss, muscle aches, swelling of the lower legs and feet, spinal headaches and brain bleeds.
Every Tuesday for the next four weeks Elizabeth with receive the Intrathecal Mexthotrexate. She will receive the Peg shot Dec. 23 and Jan. 20, and Vincristine on Dec. 23, 30, Jan 20, 27.
All of the dates are subject to change if Elizabeth gets a fever, cold, cough, even a runny nose this delays her treatment so please if you think you are sick, you are sick and please visit her when you know you are well. Two plus years is a long time for treatment and any delay just prolongs the treatment time
I know I have given out a lot of information and not nearly as well as Deb, but now you know how overwhelmed and ignorant I can feel at times. Just thought I would let you into my world ;-) You know what though, I would not change a thing because through adversity I grow more than any another time in my life and I can not wait to see the changes God has in-store for me.
I have been overwhelmed, in a good way, as to how many people Elizabeth has touched. She was a fighter when I carried her for nine months and she will continue to be a fighter and now a survivor.
May our Lord touch your lives as he is definitely touching ours.