Wednesday, May 11, 2011

My Fundraising Page

My Fundraising Page:

Wow, what a journey we have been on over the past 2.5 years. We could never have survived it without your support. Thank you for your financial generosity to our cause and helping us try to find a cure for blood cancers. Not only are you helping the thousands with blood cancer, you are also supporting various types of cancers. Some of the drugs and chemos that have come from your support have crossed over into other cancers and illnesses. You should be very proud of the good that you are doing.

Elizabeth is now in full remission and off of treatment. Her last chemo was February 15, 2011. She is still on bactrim and will be through August 2011. Her blood work that was done on April 11, 2011 showed her ANC (immune system) at 3750!!!!! If you remember, she was always neutropenic, under 500. She is gaining some weight back, her hair is growing and filling in, and she is back to school full time and playing volleyball. Lizzy's port, which is the area that all the visceral chemos were given, was removed on April 12, 2011, another milestone in this journey.

We are entering a "New Reality" and one that looks brighter! No longer will be be going to the ER in the middle of the night, no more chemo making her sick and putting her into remission at the same time, no more neutropenia and isolation, pills, needles (well still a few of those), seeing doctors 5 times a week, blood and platelet get my point.

This year the Light The Night event has changed venues, it will be at the Mason Municipal Building. The event has gotten too large for the walks previous location, this is a good thing! We would like to get a team picture before the evening events begin. I will let you know when and where later

Thank you and many blessings ~


Light The Night Walk is The Leukemia & Lymphoma Society's evening walk and fundraising event. It is the nation's night to pay tribute and bring hope to thousands of people battling blood cancers and to commemorate loved ones lost.
The Leukemia & Lymphoma Society (LLS) funds lifesaving research that has contributed to major advances in the treatment of blood cancers and treatments for other types of cancer, such as chemotherapy and stem cell transplants. New targeted therapies that kill cancer cells without harming normal tissue are providing drugs and procedures that are improving quality of life.
In fact, in 2009 alone, LLS researchers were conducting more than 90 clinical trials, a critical step in the development of new treatments and cures that will help patients live better, longer lives.
  • A donation of $25 provides patients and their loved ones with FREE booklets that contain up-to-date information on their disease and help them make informed decisions about their treatment options.
  • A donation of $50 makes possible a Family Support group with a trained facilitator where comfort can be found and experiences can be shared among patients and family members.
  • A donation of $100 helps supply laboratory researchers with supplies and materials critical to carrying out their search for cures.
  • A donation of $1,000 makes possible one- on-one conversations with health care specialists who provide patients with information about their disease, treatment options, and helps prepare them with questions for their health care team.

Please make a donation to support my participation in the Light The Night Walk and help save lives. Be sure to check my Web site frequently to see my progress, and thanks for your support!

Three months out!

Liz and Joel ...  just hangin at the Brown's;)

Elizabeth continues to do well. Her platelet count is finally above low normal range. Low normal range is 150k, she hit 160k!!!!!!!! We were questioning if she  acquired an intolerance to platelets. This can happen when you receive platelets all the time, like she did. Praise God for answering prayers.

Lizzy's immune system, ANC, is 2840. the normal range for an immune system is between 1800 - 8000. Her lymphs are still low at 22 and the normal range is 34-42. She will get there, it is just Her immune system is just a little baby ")

Lizzy's next check up is June 10. Please continue to pray for her body to continue to recover and for her to stay in remission. Remember, there have been wonderful strides made in the way of blood cancers but...there is still no cure; only long term survival. As a parent, this is not acceptable.

Jimmy's EE has gotten worse since the last scope. No changes have been made in his protocol and he will be re-scoped in three months. As far as his hips go....he has issues, but tries to work through them. He doesn't want to give up any summer time for recovery time. His body will tell us when the replacement will happen. Right now he has learned how over come some of the pain and discomfort. Please continue to pray for Jimmy and the challenges that lie ahead.

Catherine will be getting her tonsils out next month. Please pray that the surgery is successful and she has as little pain and discomfort as possible.

Joel continues to do well and is one day away from day 100. He/we are praying that he will be able to start school next year. After placing an EG tube, feeding tube, down his throat he is finally gaining weight!!!!

Ephesians 1:16 

I do not cease to give thanks for you, remembering you in my prayers,

Blessings and prayers  always ~ Christine