Thursday, February 17, 2011

Praise God!

Saying goodbye to the operating room and chemo!!!

Getting ready to leave the clinic.

When we came home that night there was a surprise waiting for her!

Signed shoes by the staff!

Wow! What a journey the past 2.5 years have been.  I can't even tell you that there was a 2009.  Our lives have gone from 2008 to 2010 with 2009 being a blur somewhere in our lives.  2011 has merged in with 2010 along the line but I am confident that it will have a life of its own soon!

As most of you know who are on my facebook, Liz is through with her treatment phase.  Thank God she will no longer be getting sick from treatment and only be getting stronger.  I asked her on the ride home from the hospital if she could tell me how she felt about this phase being over and her response was "No, there are no words to describe how I feel."  I am so proud of her and how she has handled this horrible disease and I know that I will continue to be amazed and proud of how she handles the rest of her life and this disease. 

Our new reality for the next five years is not nearly as intense and definitely more normal. Liz will have blood work and a physical monthly for the next 18 months, at the end of this time she will  graduate to every other month for a year, then graduate to every three months for 18 months, then down to every six months for 18 months, and finally once a year for the rest of her life.  

Liz will also be seeing an Endocrinologist. She will be seeing the Endocrine Doctor for Reproduction/Infertility issues.  This can be a common issue for children who have under gone chemotherapy and radiation.  Please pray that any issues Lizzy is having will resolve on their own.  

Her first visit with the Endo  Doctor will be March 17.  Liz will also have a bone density test and will have to fast for her blood work.  She will have a few EKG's (electrocardiogram).  An electrocardiogram (EKG or ECG) is a test that checks for problems with the electrical activity of your heart. The EKG and bone density tests are normal tests done due to the amount of toxic drugs and steroids that have been put into her body.

We continue to give the glory to God.  He did not give Elizabeth Leukemia, but he put the wonderful team of doctors, nurses, staff, and Children's Hospital in our path.  He gave us a wonderful team of community, prayer warriors, old friends and new friends.  This disease is not a private issue, it is one that knows no stranger.  There is no way we could have or would have wanted to keep this private.  We would not have made it through without all of you. We will be having an end of treatment party sometime in May/June.  Stay tuned to the blog for more information on it.

On a side note, we are planing a 5k walk/run and corn hole tournament on September 3, at 5:30 p.m.  The run is called Blazin with Love and will be in honor of Liz, Joel, Annie Coyle, and a few other Mason students/teachers that have cancer or are in remission.  All the profit will be going to Team Blazin with Love for the Mason's Light the Night Walk on Sept. 15, 2011. The LTN walk supports the Leukemia/Lymphoma Society.  Stay tuned for all the fun events.

Please keep Joel Brown in your prayers.  He is progressing like he should but is in a great amount of pain and discomfort.  Please pray that the engraftment of his sister's cells take root in his body and start to become his own.

Please keep Critter and his family in your prayers. Pray for peace, comfort, and wisdom for them.  Let them be at peace with the decisions that they have to make.

Please pray for peace and comfort for Courtney, another one of Mason's special little ones. She was the other child in the fundraiser with Liz and Joel from Gary's barber shop in 2008 or 2009 (see I told you 2008/09 are the same for me). 

Thank you to all the student, staff, and friends that came out for Zumba for Leukemia.  It was fun and a great success!

Always praying!

Oh give thanks to the Lord; call upon his name;

make known his deeds among the peoples!
Sing to him, sing praises to him;
tell of all his wondrous works!

Friday, February 11, 2011


Okay, we need prayers for Liz.  She has been sick off and on since Thanksgiving.  We went to the hospital yesterday, Feb. 10, due to her being sick and her end date so close.  The docs ordered blood cultures for all sorts of  virus and bacterial infections.  Mary Snow, her nurse coordinator,  called us today and said that Liz has tested positive for the RSV/PCR virus.  UGH..............
The game plan for the weekend is:  rest and hydration.  She has labs on Monday and we pray she can finish out her chemo on Tuesday as planned for the last two years.  On Tuesday she will arrive at the hospital at 6:30 a.m., have a complete physical evaluation to see if she is healthy enough to go through the surgery and receive the chemo's.  If she is not able to complete her treatment on Tuesday, Dr. Absalon said the treatment will be rescheduled.  Needless to say, Liz is very sad about the new turn of events.  If Liz has a fever at any time, she will need to go to the ED and will be admitted for at least 48 hours to 10 days.
Thank you for your prayers and being faithful,

Tuesday, February 8, 2011


WOW! WOW! WOW!  That is all that I can say.  Well, I can say a lot more but I won't.

This has been a very long and hard road.  We have come 1,097 days out of our 1,104 days of treatment.  We are down to SEVEN days left.  It feels so surreal.  I am going through her apothecary draw, her medicine draw, filling her pill box and I realize that I am at the end, the box is empty for the last two weeks of this month, I keep picking it up, wanting to fill it thinking that I have forgotten to do this.

As I look back, I have seen tremendous growth in Elizabeth, our family, and her friends.  What a gift God has given to all of us in that respect.  Even as I say this, I find myself feeling very weak and frightened to take her off of her chemo.  The chemo is the agent fighting the monster that invaded her body two and a half years ago, without her having the chemo, I feel like I am free falling. I need prayers for strength not to borrow worries from tomorrow.  All I can do is continue to pray to our Father that he keeps Elizabeth in remission; that this cancer never rears its ugly head again.  Knowing that there is not a cure is a frightening reality for a parent to face.  I can only pray and drop my worries at the foot of the cross.  

Thank you to everyone that has shared in our  journey.  We could not have made it through the past few years without your prayers, help, and great show of love and support.  Please, NEVER stop praying for Liz and those suffering with cancer.

Specific pray requests:
Elizabeth finishes out her last seven days strong
Minimal side effects from her chemo
Joel Brown, that Alli's bone marrow engrafts  and begins to make it his own, mouth sores, fevers, and rest
Critter, that the spots found in his lung and brain are just by-products of the chemotherapy
The staff on the 5th floor of Children's Hospital

If you want to be a hero to someone ...... go and donate blood or platelets this week!

Blessings and Love in Christ,