Thursday, March 19, 2009
The Phase of Delays
Yes, that's right, another delay! Those darn platelets are giving her grief. They need to be at 75k and they are down to 53k. We have had to stop the 6MP (chemo pill) that I give her at home until she is able to continue on with this phase. Evidently one of the side effects of the 6MP is it can cause the platelets to drop and as I have said before, she has sensitive platelets. Platelet transfusions only hold for a day or two before her body rejects them. Home care will be out this Sunday to access her port and draw blood to check her counts. If they are good, we will be admitted on Monday at 10:15 am, if not we will try for Tuesday.
I was not surprised that her platelet count was too low, that happened the last time as well. I am disappointed that we have a delay. Elizabeth was like "great!" Now I will be home on the weekend. Unfortunately she is sick with a cold and will not be able to have friends come over. :-( Please pray that she does not spike a fever. If a fever comes on we are at Children's for 14 days, on several antibiotics, without question. After being home, that would be hard to take but you do what you must for survival.
I will let you in on Lizzy's life right now, she is trying to sleep beside me with her waterfall running on her nightstand and her ipod playing the Sounds of the Season, Thunderstorm. She just loves that stuff and actually...so do I. It is rather serine. :-}
Please pray that we have a peaceful night sleep. Her bag is packed and ready to go if she should spike a fever. A fever is not much when you have Leukemia - 100.5 - that does not give you room to play with! She is pretty miserable at the moment and I can not give her any meds for the cold. Doing this could mask a fever and they need to know at all times what her body is doing. Well I can tell you..... it is feeling pretty crappy to put it mildly. :-(
I know I sound a bit down and I guess maybe at times I am. Sometime, even as a strong person of faith, it can get to you to see your baby hurt and suffer yet try to be so brave and strong for everyone; especially for her mom.
Please keep the faith for me when mine gets battered. I never stop believing and trusting in God for a minute but it still gets hard, I m only human and a parent yet to boot.
her cold goes away
mouth sores continue to heal
no renal (kidney) failure
for Randy and Jimmy's safe journey, college scouting in Florida this week
All the families on A5 South, that they may feel the love and security God has for them even in a time of complete and utter upheaval in their family life.
Blessings to each and everyone of you,