Wednesday, January 7, 2009
Day 30 of Consolidation
Elizabeth and Aunt Theresa snuggling and sleeping before the start of day 29 of the Consolidation Phase...I thought she felt puny then.....
Whew.......what a day. We are now home from our overnight admit from day 29. If today is any indication of what is to come from this AraC over the next two weeks we are in for a nasty ride.
Most of the morning was spent finding a way to keep her from vomiting. She gets pretty ugly when that happens; I can't say I would be much better! One should never see a toilet from that view point, it is just not a good way to start the day or end the day or any way in between for that matter.
With the aid of Zofran, Benadryl, and Phenergan, we managed to get everything under control and she finished out the day by sleeping it away. This will be her protocol for the next two weeks. Her good days should possible be this Sat., Sun., and Mon, and I know if she is feeling well she would love to have friends over.
We will go back to clinic on Tues. for a physical and they will monitor her blood counts through blood draws this Fri. and coming Mon. By Tues. or Wed. of next week her counts will begin to drop and she will not be allowed to have visitors.
Elizabeth continues to meet this challenge and journey head-on. She is a remarkable girl and I learn from her every day. Just watching her struggle and yet gives out grace when she is so very sick is such an inspiration. I truly do try not to complain anymore; I have no reason for complaining. God is taking care of all our needs and gives us strength when we need it and even when we don't think we do. He is truly a marvelous and awesome God. I hope all of you get a chance to experience him and his over-powering love for each and every one of us.
Please continue to pray for her side effects:
Severe abdominal pain
Mouth and GI sores
Muscle and joint pain
Kidney and bladder failure
As always please pray for our families on the 5Th floor of Children's and baby Claire Pope; she may be going home with her mom, Lizzie's Dr., Dr. Jen, next week.
I will continue to pray for all of you and your families and the blessings and strength you are continuing to give Elizabeth and my family.