Here we are back in Children's on the 5th floor A-546 South. I keep telling myself that because every time I leave this room, I try to go back into our old room. That sure would be a scare for some poor child.
Things are pretty quite in the room; Randy is laying on the bed giving Liz back-rubs. She feels pretty puny right now. I guess I would too if I was pumped full of all the chemo and meds she is. As Elizabeth says "just when I start to feel good they go and jack me up again." I just had to laugh and cry at her expression.
Day 29 is a repeat of the first 28 days in Consolidation. The one thing that has changed is no IT MTX (methotrexate chemo) in the spine. She does not have to go to sleep every Tuesday for the next four weeks. However she loves the feeling of going to sleep...a little scary don't you think?
She has received mega doses of chemo today, Cyclophosphamide which takes about two hrs to prepare the body for it, 30 min. to give it through her port, and 24 hrs. to flush the dead cancer cells out of her system, AraC, cytarabine, which is a four minute push through her IV, and Mercaptopurine, which is two pills. The Cyclophosphamide will stay in her system for the next four plus weeks, the AraC (cytarabine) and the Mercaptopurine I will give at home over the course of the next two weeks. If you remember, the AraC is the one that put her in the hospital a few weeks ago. This chemo drug is wicked and we both hate the side effects. She will meet up with this little devil later on in her protocol too. YUCK! I swear she shutters when you even say the name.
If all goes on schedule she will begin the next phase called the Interim Maintenance 1 on Tues., February 3rd. Of course all the numbers need to be in place, her platelets of 75,000 and ANC of 750. There will be new drugs to introduce to all of you, a new schedule, and new and old things to continue to pray for. Tune in for and Interim Maintenance 1 update in a few weeks. I love cliff hangers don't you?
Please continue to pray for:
Elizabeth's health and the health of her family
minimal side effects
NO EMESIX (vomiting) Randy does not like the word vomit so I am using the medical term
Elizabeth's docs, nurses, housekeeping staff, and all who have committed themselves to her care
all the children and families on the 5th floor at Children's
I just want to say thank you for all of your prayers and support. I don't know where I would be without God, my family, and friends. I will be keeping all of you in my prayers.