Thank you for all the prayers for Liz over the weekend. It was a pretty tough weekend but the chemo picked on the wrong girl. She fights back and fights hard. Her treatment was Friday morning and she just never recovered from it. Things progressively got worse until she spiked a fever and her resting heart rate was at 147. They gave her fluids, drew blood for cultures and nose swab to check for the flu. We are relieved to say that all in negative, her heart rate is down to 85, no fever, and she is keeping her food down. Liz was released on Tues. and she is looking forward to the walk tomorrow. A new medicine called Gabapentin, formally used as an anticonvulsant (trade name Neurontin) used to control some types of seizures in the treatment of epilepsy; also used to manage neuralgia caused by shingle, is now being use on Liz 3 times a day for the joint and muscle weakness and pain in her legs. Liz will remain on this for the rest of her treatment but it should allow her to walk without the aid of her crutch or a wheelchair.
ON TO INFO FOR LIGHT THE NIGHT!
Team Blazin' with <3 will meet in front of the stage. There will be food and drinks provided. Liz and Joel will share their stories between 7:00 and 7:15.
Registration opens at 5:30 pm. Free Food will be available from 5:30 to 7:00, thanks to our generous vendors. There is also a Kids Area to include a bounce house, face painting, balloon animals, and other fun stuff. We will have a short program, including the Remembrance Ceremony and Guest Speakers, that will begin at 7:00 pm. The Walk itself will start around 7:30 pm. The Walk distance is a little over a mile.
Any Walker having raised $25 will receive a balloon. Red balloons are carried by Supporters, White balloons are carried by Survivors, Gold balloons are carried by a team who has lost someone to a blood cancer (1 gold balloon per team). Any Walker having raised $100 will receive a Light The Night T-Shirt. If you are a Cancer SURVIVOR, make sure to ask for our special blue SURVIVOR shirt! Any Walker having raised $1,000 will receive a long sleeved Bright Lights T-Shirt.
We have worked on improving the parking situation at Mason Sports Park this year. You can park in the parking lot until the lots are full, then they will be closed off so no traffic will be able to get into the park. We have opened up a new parking area across the street from the Sports Park in the large, empty grassy area. There will be volunteers and police directing traffic into the parking area, so please slow down as you approach the Park. There will also be police escorts to help everyone safely across Mason Morrow Millgrove Rd. Although we've opened up quite a bit of parking spaces, please carpool if you can!
3 comments:
What a great event. I will be with you in spirit. I will be doing a two mile walk on the beach for you liz! let's see if I can finish!!!!
love,
Aunt Cec
Hey Christine and family!
I do hope you remember us.
My Father died last week with colon cancer. He was 79 years old. Dad refused any kind of chemo.
I don't talk about it a whole lot because I still can hardly think about it without falling apart.
But what I can do is frequently visit your site and check up on miss Liz.
She is such a strong spirit.
She is such an unusual teenager, you know that right?? Always so polite and sweet to me even though she hardly knew me. Kind of threw me off because I'm used to teenagers being,, um,, not as nice :)
Anyway, please know that we are praying for Lizzy and your family. I honestly think about her every day because I so desperately want her to beat this. My Dad couldn't even put up a fight.
I'm sorry to get all emotional on you when I probably haven't spoken to you in 2 years!
I have to go-Henry just woke up. We will try to make it to light up the night.
Please take care.
xoxoxoxoxo
~Sarah, Chris and Henry Thomsen~
Can't wait to walk in the Light the night tonight. See you on stage you glitter girl. Shine on!
Annette & family
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