Wednesday, July 8, 2009
We are here!
Here we sit with her wonderful team of doctors, Dr. Jen, Dr. Absalon, Mary Snow, our Nurse Coordinator, and Angela, our Clinic Nurse Practisioner, all dresses up with her port now accessed. All of Lizzy's medical team has been in to see her and ask her all the pertinent questions that she just loves to answer. I swear if you heard her answer these questions you would think she is not a well educated child, it is so embarrassing. I told her I am going to secretly tape her so she can hear what she sounds like .... UGH!
We are now waiting to go over to the main OR on floor 3 in the B building. Her procedure, LP with chemo, is at 11:00 am. Her tummy sounded really nice to Dr. Absalon through his stethoscope. On OR days they love to hear the tummy grumble, it means their stomach is empty the way it should be.
We are so excited to be here and start on finishing out this phase; even though it is going to knock her for a loop. Her counts will be down most of the time and she will be very susceptible to any illness that is out side of our little world on Windy Hollow Way. It will be very important for you to call first before coming to visit. Please call ME, not Elizabeth for verification to visits. She will tell you yes because she wants to see you even if she knows it is not in her best interest. However, along with low counts she will be outwardly pretty sick. The first half of this phase is harder on the internal organs but the second half is more visible to the outsider and physically makes her sick with flu like symptoms. These are the drugs that landed her unexpectedly in the hospital at Christmas 2008.
Thank you for your continued prayers during this delay and over the past eight and half months.